As my boyfriend said when he opened suitcase ‘It looks like a pharmacy in here’. In this video I show you all the things that I’ve packed for my short cruise holiday / vacation. I’m very excited but it’s my first holiday where my illnesses have really caused me problems so it’s also a little daunting. Hopefully you enjoy seeing what I’ve packed and are looking forward to my upcoming holiday vlog.
I had been trying to sit and write blog post for ages but have had such a bad time with pain and poor concentration I was having a hard time managing to write anything at all let alone something coherent. So I did a video instead to try and update you on my battle with chronic illness so far and the fight I’m currently trying to win to in regards to getting my pain down and the challenges I face with pacing, guilt and coping mentally as well as physically. I was pretty fatigued when I was filming this so hopefully the point comes across. Love & Spoons to you all. It gets tough at times but we can do this!
EDS awareness month may be over but for those living with the condition it is a never ending battle. So I’ve offered to team up with Hannah over at Sunshine & Spoons to help co-host an amazing giveaway she’s offering which includes all these amazing EDS awareness prizes and I’m super excited to be a part of it 🙂
This amazing prize includes: Zebra Ribbon Decals, an EDS ribbon necklace from Kat Makes Stuff, an EDS awareness tee, 3 EDS lapel ribbons, 10 lemon challenge cards, 10 EDS fact cards, 3 EDS awareness bracelets and an EDS awareness mug.
All you have to do to be in with the chance of winning this awesome prize package is enter here:
a Rafflecopter giveaway
Unfortunately, due to high shipping costs this giveaway is only open to all you lovely people who live in the USA and Canada. Anyone else will have to pay shipping costs. Your email will only be used to notify you if you win. All entries will be verified. The prize opens on 20th June 2017 and closes on 27th June 2017. Good Luck!!
Hannah from Sunshine and Spoons
Sarah from My Stripy Life
Brittany from A Southern Celiac
Sara at Zebra Writes
Jenni at 1nvisibl3Girl
Mary at The Headache Heroine
Ever wanted a little snoop in my handbag? 😛 You’ve probably not really thought about it but if you share any of my chronic illnesses its probably worth having a look as there may be some things in there you may find useful!
Bit of a different video for me. I recently became an Avon rep and wanted to share some of their awesome products with you. Let me know what you think! For all my zebras, I’m still selling Zebra PJs & Slippers and am donating 5% to EDS UK, Get your orders in! If you like anything you can order with me online at avon.uk.com/store/shop-with-jenni
The Lovely Georgina over at Georgina’s Journey tagged me to do the TMI tag so I could tell you all a little more about myself outside of my Chronic Illnesses. So here’s me answering 50 questions so you can found out some facts about me!
If you like this video please subscribe to my channel.
Thanks for the Tag Georgina : https://www.youtube.com/channel/UC2wf…
Zay The Zebra: https://www.youtube.com/channel/UCXL1…
Chronically Micaela: https://www.youtube.com/user/Chronica…
Chronically Cassidy: https://www.youtube.com/channel/UC78p…
Here is the link to my gluten free & vegan Lentil Bolognese recipe:https://1nvisibl3girl.wordpress.com/2…
Here is the Link to my online avon store please follow it and search Zebra to find the Zebra pyjamas and slippers. If you make a purchase 5% will be donated to Ehlers Danlos Support UK: https://www.avon.uk.com/store/Shop-Wi…
As you will know, if you are a regular to my blog ( or any of my social media really) you will know that May was Ehlers Danlos Syndrome Awareness Month. Now May, and awareness month, might be over (Where is this year going, right?!) but for those living with EDS it is a daily struggle that lasts a lifetime. So in order to continue spreading awareness I am trying to raise a little money for Ehlers Danlos Support UK, a UK charity which; raises awareness among the public and, more importantly, the medical community; supports sufferers, like myself; and hopes to, maybe, one day, help find a cure for this disabling genetic condition.
People with Ehlers- Danlos Syndrome call themselves Zebras, as doctors are taught ‘when you hear hoof-beats, think horses, not Zebras’ meaning they think of the most obvious and fixable answer to the problem not a complicated or rare condition, but it often means symptoms are not added or managed effectively which delays diagnosis.
So this month you can buy these amazing Zebra Pyjamas (£13) and Slippers (£8) by searching Zebra on avon.uk.com/store/Shop-With-Jenni and I’ll be donating 5% of your purchase to EDS UK. Whether your a Zebra or want to support a Zebra, I’d love you to buy, wear and share these pjs with the #ZebraStrong and get people asking ‘Why the Zebra?’.
#eds #zebrastrong #zebra #avon